Journal Club on Rare Disease

Date:

12 December 2025 (Friday)

Time:

12:30 pm - 1:30 pm

Mode:

Hybrid mode

-Video conference (By Zoom); or

-On-site at the Research and Data Analytics Office of Health Bureau

(9/F, Rumsey Street Multi-storey Carpark Building, 2 Rumsey Street, Sheung Wan, Hong Kong)

Remarks:

i) Speakers will join on-site;

ii) Light lunch can be arranged upon prior request

CME/CPD:

Accreditation pending

(Hong Kong College of Community Medicine

The Hong Kong College of Family Physicians

Hong Kong College of Paediatricians

The Hong Kong College of Pathologists
Hong Kong College of Physicians

Medical Council of Hong Kong)

CNE

1 CNE hour

Presentation 1

Topic:

Translation and Validation of Client Service Receipt Inventory (CSRI) in Patients with Rare Genetic Diseases in Hong Kong

Project:

Title same as above (Ref. No. 07182426)

Presentation 2

Topic:

Socio-Economic Burden and Health-Related Quality of Life in Patients with Rare Diseases in Hong Kong

Project:

Title same as above (Ref. No. 08191966)

Speaker:

Dr Brian CHUNG Hon-yin

Clinical Associate Professor

Department of Paediatrics and Adolescent Medicine

The University of Hong Kong